My mother has PSP. She's been living with me for 6 weeks now. Her current condition belies the things to come. She still walks and talks and eats. I have made modifications that currently seem unnecessary. We have a chair lift for the stairs; ramps for the back yard; a bathroom on the first floor.
She's so proud that the therapists tell her how much more she can do than others they have worked with. She thinks she will not get the full-blown brunt of it. I can't imagine it. There is no telling how the disease will get her.